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イギリスの在宅介護者関係文献一覧(1)

資 料

紹介に当って

富 紀 敬

ここに紹介するのは、イギリスの在宅介護者に関係する文献である。専門研究者の論文や著書は言う に及ばず、政府や議会、地方自治体、研究所及びボランティア団体などの手になる文献を含む。文献の 総数は、3,700点を超す(1999年2月16日現在)。いずれも筆者が収集のうえ、静岡大学社会政策研究室に 所蔵の文献である。

在宅介護者に関係する文献とは、主に次のような内容からなる。第一に、在宅介護者の規模と構成、

その負担とニーズ及び援助に関する調査研究である。少数民族の在宅介護者や在宅介護を担う児童に ついての調査研究も、当然のことながら含まれる。第二に、コミュニティーケア憲章や同名の計画、

在宅介護者憲章及び在宅介護者情報便覧などである。第三に、在宅介護者の支援に乗り出すボランテ ィア団体の年次報告書や各種のパンフレット類である。最後に、賃金水準をはじめ住宅、交通手段及 び公共サービスなどコミュニティーの労働・生活条件に関する調査研究の成果である。

文献の多くは、イギリスで発行された物である。同時に、アメリカをはじめカナダ、フランス、ベ ルギー、スウェーデン、オーストラリア、ニュージーランドなどの国々で発行された文献、あるいは、

ヨーロッパ連合(EU)や経済協力開発機構(OECD)などの国際機関あるいは国際レベルの団体の手 になる成果も、在宅介護者に関わる文献である場合に、僅かな点数ながらここに含まれる。

以下に紹介する文献の多くは、ご覧いただけるならばただちに了解されるように一般の販売ルート に乗らないものである。筆者は、関係する機関や団体に直接出向いたり、あるいは手紙を介するなど

してこれらの文献を入手したものである。

イギリスの在宅介護者に関係する文献としてわが国にこれまで紹介され検討にふされたのは、専門 研究者の論文や著書の類である。殆どの紹介は、この域から出ていない。紹介される点数も、専門研 究者の業績に限ってさえせいぜい2桁どまりで、それも低い方の2桁ある。これらを通して紹介された 文献は、在宅介護者に関係する文献の重要ではあるものの、あくまでそのごく一部にすぎない。政府

や議会あるいは自治体やボランティア団体の手になる膨大な一次資料の存在を忘れるわけにはいかな いのではなかろうか。イギリスにおける在宅介護者の問題は、他の社会問題と全く同じように一次資

一118−

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料を抜きに到底明らかにしえないのではないか、と考えるものである。

イギリスの諸団体に付設される図書館や資料室、たとえばキングス・ファンド(KingsFund)をはじ めナショナル・ソーシャルワーク研究所(NSWI)、全国在宅介護者協会(CNA)ロンドン支部、イー ストサセックス在宅介護者援助協議会(ESCCC)、エイジコンサーン・ウェールズ、エイジコンサー ン・スコットランドなどのそれは、在宅介護者に関する文献を数多く所蔵していて、利用者にとって 至極便利である。特にキングス・ファンドの図書館は、最も多くの文献を所蔵し、コンピュータによ る文献検索の容易さとも相まっていかにも便利である。しかし、在宅介護者に関係する文献は、この 図書館と言えども万全でない。在宅介護者の規模や構成ならびにその負担と援助に関する調査研究に 限っても、その所蔵は、以下に紹介する文献の数に及ばない。

尚、イギリスの諸機関や団体から筆者にあてられた手紙は、1,αX)通を超す。その中には在宅介護者 の規模と構成あるいは援助の状況を詳しく伝える手紙も少なくない。なにがしかの資料的な価値を持 つように思われる。しかし、関係文献一覧として公表することを予定して送っていただいた手紙でな いことから、以下の一覧に含めていない。

文献の収集に当っては、ブリティッシュ・カウンシル図書館、アメリカンセンター名古屋図書室に 諸機関や団体の住所を教えていただいた。特に後者の図書室には、アメリカの団体のホームページに アクセスして団体の名称はもとより発行する印刷物などを調べていただくなど、ご好意あふれるお力 添えをいただいた。文献の収集は、これらのお力添えなしに到底不可能であったと思う。記して感謝

の意を表しておきたい。

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BritishRedCross,CarerSPrqject,helpingcarerShavetheirsay,BritishRedCrossCountyDu血amBranch.

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CalderdaleCouncil,CommunityCare,auSerlsandcarer sguideincorporatingtheCalderdalecommunitycareChar−

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CambriaCountyCouncil,CarerS(recognitionandservices)act1995,C∬er−sassessment,CambriaCountyCouncil.

CambridgeshireCountyCouncil,AdultcareSerVicesinCambridgeshire1997,CambridgeshireCountyCouncil.

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CamdenCrossroads,11thannualreport1995−96,CamdenCrossroads.

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CamdenFamilyServiceUnit,Camdenyoungcarers,CamdenFSU・

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CanadianAss∝iationfbrCommunityCare,Bestpracticesinrespiteservicesforchildren,aguidelbrfami1iespoli−

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Canted)uryandThanetCrossroads,AnnualgeneralmeetlnglOthJuly1997,CanterburyandTnaJletCrossroads.

CapitalCarers,Annualreport1997−98,CapitalCaJerS・

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CarersAss∝iationofAustraliaInc,Amualreport1994−95,CAA・

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−.Fairdealfbrcarers!,ftderalelectioncampalgn1996,CAA・

−・Forftitingtheirfuturestobe,arePOrtOnyOungerCarerSCOntributionsandneeds,CAA,October1996・

−・Listentothecarers!,themanyvoicesofcare,rePOrtOftheNationalCarerSConsultationtointemational

yearofthefamilycouncil,preParedbrCarerSAss∝iationofAustralia,CAA,September1994・

.Nationalcarersawards,CAA.

CarersAss∝iationofSouthAustraliaInc,BibliographyofcurrentpolicypaperSOnC∬erS,CarerSAss∝iationof SouthAustraliahc,December1996.

−・Carersvisionfbr2(X氾andactionplan,CarersAss∝iationofSouthAustraliaInc,July1997・

−・StatecarerSpOlicy;SumissiontotheofficeR)rfamiliesandchildren,CarersAss∝iationofSouthAus−

b・aliaInc,1996.

−・SupportfbrcarerSinruralareaS,rePOrtOnaprqeCtfundedbytheS・A・HealthComissionunderthepn−

maryhealthcareadvanCementprOgram,Ca陀rSAsS∝iationofSouthAustraliaInc,December1995・

−・Whocares?,ValuesandbestpracticeintrainlnganddeliverylnCOmmunltyCaretrainlngPathwaysfbr

canng,ITABconference15−16May1997,CarersAss∝iationofSouthAustraliaInc,1996・

CarerSAss∝iationVictoria,Annualreport1993−94,CAV・

−.Annualreport1994−95,CAV・

−.Ammualreport1995−96,CAV・

−・Annualreport1996−97,CAV・

−.Sb・ateglCPlan,CAV,November1995・

−・VictorianCarerSCOmPrehensivefact,figuresanddennitions,CAV,December1997・

−.VictorianCarer,TheNewsletterofCAV,Summer1998,Autumn1998,CAV・

CarerSAss∝iationofWestemAusb・aliaInc,Annualreport1996−97,CarerSAssociationofWAInc・

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.CarerreSOurCeCentre,CarerSAssociationofWA,MarCh1998.

.CarerSretreat,CarerSAssociationofWA.

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TheCarerSCentreBristol,CarerSinfbrmationpack,CCBristol.

・CarerSSupPOrtgrOuPSneedssurveyMarCh1995,ccBristol,March1995.

CarersCentreR)rBrightonandHove,AbouttheCarerSCentre,CarerSCentreR)rBrightonandHove・

・CarerS CentreBulletin,Vol.11,March/Apri11998.

−・Factsheet,No・1,AbouttheCarerS Centre,Carers CentrefbrBrightonandHove.

−・Factsheet,No・2,AnA−Zguidetohelpinthehome,CarerS−CentrefbrBrightomandHove・

・Factsheet,No3,Reliefcareandcornmunitynursingservices,Carers CentreR)rBrightonandHove.

−・Factsheet,No・4,Benefitsfbrcarersandthosetheycarefor,CarersICentrefbrBrightonandHove.

・Factsheet,No・5,Transport,Carers CentrefbrBrightonandHove.

・Factsheet,No・6,CommunityCare,Carers CentreforBrightonandHove.

・Factsheet,No・7,Holidays,CarerS CentrebrBrightonandHove.

−・Factsheet,No・8,HowtocomplainabouthealthcareServices,CarerS CentrefbrBrightonandHove.

・Factsheet,No・9,FuneralS,Carers−CentreforBrightonandHove.

−・Factsheet,No・10,Out−Of−hoursandweekendcontactnumbers,CarerSICentrefbrBrightonandHove.

−・OutreachBrighton,annualreport1996/97,CarerS CentreforBrightonandHove.

−・YoungcarerSprqJeCt,Carers−CentrefbrBrightonandHove,MarCh1998.

TheCarerSFederationNottinghamandNottsLtd,Actionfbryoungcarers,CFNN,1997.

−・CaringandSharing,Issue12,Spring1996,CfNN.

・Help!,Pleaseuseintheeventofillnessoraccident,CFNN.

−・WhatistheCarerSFederation?,CFNN,February1996.

CarersinDorset,Caringmatters,amagaZineR)rCarerSinDorest,Winter1998.

CarerSinHackney,Callingallcarers,neWSletterforCarerSinHakney,Vol.1,No.6,December1997.

CarerSinHertfordshire,Makesurethey realright,CarersinHertfbrdshire,October1997.

CarerSImpactWorcestershire,Caring?,neWSletter,Autumn1996.

CarerSTnbrmationandSupportService,Annualreport1995/96,CISS.

−・TakecareinBromiey,thesituationhcingcarersinBromleyandwaysforward,CISS,January1992.

・Uptonline,CTSS.

CarersInformationResourceCentres,LiveIOOIEleven,Fact−nndingexercisetheneedsandpnoritiesofcarerS,

CarerSSpeakoutinCroxteth,Gillmoss,NomisGreen,LiverpooICIRCLE.

CarersLewisham,Annualreport1995/96,CarerSLewisham.

・Annualreport1996/97,CarersLewisham.

・Annualreport1997/98,CarerSLewisham.

・A陀yOuayOungCarerS?,Ca陀rSLewisham.

−・Areyoucaringforachild,relativeorhiendwhohasadisabilityOrWhoisfrailorill?,CarersLewisham,

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Sep喝nber1995.

−・AreyoucanngR)raChild,relativeorfhendwhohasadisabilityorwhoisfrailorill,CarersLewisham,

January1997.

−.rnleCarersnewsletter,October1995,Nov/Dec1995,September/Octotxr1996,JanuaryMebruary1997,

August1997,December1997,February1998,August1998,October1998,CarersLewisham・

−・Doyoul00ka魚ersomeone?,CarersLewisham・

−・DoyoulookaRersomeonephysicallyormentallydisabled,frailorill,athome,CarersLewisham,May

1995.

−.Reportonworkingwithca陀rSfromblackandethnicminorityCOmmunities,CarersLewisham,August 1990.

−・Resultatsofatelephonesurvey,CarerSLewisham,October1994・

Carerslink,Helpandcare−sca陀Slink,areyOuunder18andlookingaftersomeone?,Carelink・

CarersNationalAss∝iation,Aboutyoungcarers,CNA,Apri11996・

.AdultcareraSSeSSmentS,CNA,September1995・

.Annualreport1992−93,CNA・

・Annualreport1993−94,CNA・

−・Annualreport1994−95,CNA・

−.Annualreport1995−96,CNA・

.Annualreview1996−97,CNA.

−・Areyouacarer?,CNA・

−・AreyoucanngR)rSOmeOne?,CNA・

−・Areyoucanngfbrsomeoneathome?,areyOugettlngthemostfromyourpnmaryhealthcareteam?,

CNA.

−・AreyouJugglingpaidworkwithcanng?,CNA・

.AssociatesofCarerSNationalAssociation,CNA.

−・Athrawon,maeargyhnhalwyrifanceichangen!,CNA・

−.BranchNewsheet,Spring1997,CNA・

−・TheCarer,September1993toJanuary/February1999,CNA・

.CareraSSeSSment,CNA,Apri11994.

−・Carersassessment‥itsimpactinSomerset,arepOrtbyCNATauntonandDistrictBranch,CNA,Septem−

br1998.

−・Carersc∝le,eightkeypnnciplesfbrhealthands∝ialcareproviders,CNA・

−・CarerSdirectory,COmPiledbyIsleofWightBranchoftheCNA,CNA,October1993・

−.Carersemergencycard,CNA・

.ACarer−sguidetoservices,CNA・

−・CarersNewsletter,Issue3,September1996,Issue4,November1996,CNA・

−・Carersupdate…CarerSufXlate…neWlegislation,CarerSreCOgnitionandservicesact1995,CNA・

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(21)

−・CarerSWOrkersinformationbulletin,June1998,December1998,CNA.

−・Carersworkers,SupPOrtlngyOuinyourworkwithca陀rS,CNA.

一・Caringforcarers,COnfbrencepr∝eedings,firstintemationalconfbrenceonfamilyca托,14and15May

1998,CNA,1998.

−・CaringfbrcarerS,PrOgrammefirstintemationalconftrenceonfamilycare,14and15May1998,CNA・

・・CNA,thevoiceofcarers−abriefguide,CNA,1998.

−・Courseguide,lookingforexperttrainlngOnCOmmurutyCare?,CNA.

・・AFairdealforcarers,yOurguidetogettlngServices,CNA.

・・GettingthemostfromyourpnmaryhealthCareteam,aguidefbrcarerS,CNA.

・・Holidayinfbrmation,COmpiledbyBoltonCarerSSupoorthQject,CNA,1997.

・・Info,arranglngandpaymgfbrresidentialandresplteCa托,CNA,Septembr1993.

・・Info,tXnentS,CNA,September1993.

・・Info・budgetlngR)rCarerS,CNASeptember1993.

・Info,thecarerSPremium,CNA,September1993.

・・Info,COmplainlngabouthealth,S∝ialservicesands∝ialworkdepartments,CNA,February1994・

・Info,COplngWithstress,CNA,June1995.

・Info,COunCiltax,CNA,January1996・

・Info,dealingwithsomeoneelse−smoney,CNA,September1993.

・Info,equlPmenttOaiddai1yliving,CNA,June1995.

・Info,factsaboutca陀rS,CNA,February1994・

・Info,factsaboutcarers,Ref;23(IS),Whatisacarers?,CNA.

・Info,gettlngaltemative,CNA.

・lnb,hospitaldischarge,CNA,September1993.

・Ir血),howtonndoutaboutholidays,CNA・

・Info,mOneyWOmies,CNA,January1996.

・Infb,NHSandcommunitycareact−Whatitmeansfbrca陀rS,CNA,June1995.

・Info,ralSlngalumpsum,CNA,August1993・

・Info,renOVationgrantS−includinghelpwithhouslngrepalrSaJldadaptations,CNA,August1994・

・Info,Whoweare,Whatdo,CNA.

・IntrducingtheCNABlackandMinorityEthnlccarersPrQject,CNA.

・Invalidcareallowance,Ref;10(m),CNA.

・Jointoday,herearethreeg∝dreasonswhy,CNA・

・Joinusandspeakupforca陀rS,CNA.

・AJugglingtask,theinvoIvementofvolunteersinsupportofcarersinScotland,CNA,1998.

・Jugglingyourjobandcanng?,CNA.

・Link,yOungCarerlink,No・8,July1996,No・11,Apri11997,No・12,July1997,No.13,October1997,

No・14,January1998,No・15,Apri11998,No・16,July1998,CNA.

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(22)

−・Lookinga氏erarelativeorfriend?,there sanewlawtohelpyou,CNA・

.Netwofker,thenewsletterR)rCarerSWOrkerseverywhere,Issue4,July1996,CNA・

.ANewadvicelineR)rCarerSatthecostofalocalcal1,CNA.

・TTleNewcarerS−cde,tenkypnnciples,CNA.

−・NewrightsfbrcarerS,thecaJerSreCOgnltlOnandservicesact−Whatitmeansforcarers,CNA,MarCh1996・

−・Newrightsfbrcarers,howtogetmycarerSaSSeSSment−aCarerSguide,CNA,MarCh1996・

−.APackofinfbrmationconcemingthecarerS(recognitionandservices)act,CNA,August1996・

−・APlainenglishguidetothecarersrecogrutlOnandservicesact,CNA・

・Proftssionalpackonyoungcarers,CNA.

・Publicationscatalogue1997,CNA,1997.

・SettingupacarerSgrOuP,CNA.

・Speakup,Speakout,CNA,1992・

−・StrategleSandstruCtureSWO止ingwithyoungcarerS,COnftrencereportOctober1993,CNA・

−・AStrongervoice,theachievementsofthecarerSlmovement1963−93,CNA・

・Takingabreak,CNA.

・Teachers,yOungCarerSneedsyou!,CNA.

.Thereare7millioncarerSintheUK65%sufftrfromillnessorlrt)ury,CNA.

−.Trainingprogramme,trainingincommunityCarelegislationandissuesforproftssionalsworkingwith CarerS,CNA,1998.

.Under18?,knowaboutyoungcarerS?,CNA.

−・Update−CarerSreCOgnltionandservicesact,CNA,October1995・

.TheVoiceofcarerSatlocallevel,CNA.

・Whencanngbecomesacrisis,CNA.

−・Whocares?,perCept10nSOfcanngandcarers,arepOrtOfaquantitativesurvey,CNA,Apri11996・

.Whoweare,Whatwedo,CNA.

・Youngcarer,CNA・

・YoungcarerinR)rmationpack,CNA.

−・YoungcarerSpublicationslistandorderfbrm,CNA,July1996・

−・Yourguidetorightsandservices,COmmunltyCare,CNA,June1995・

CarersNationalAsociationandCommunityCa托,Youngc∬erSbackthemup,repOrtOfamulti−disciplinarycon−

ftrencesupportedbytheBritishMedicalAss∝iation,CNAandCommunityCare・

CarerSNationalAssociationBreconandDistrictBranch,Annualreport1996−1997,CNABreconandDistrict BranCh.

−・Incomeandexpenditurebryearended31・3・1997,CNABreconandDistrictBranch,1997・

CaJerSNationalAss∝iationDundeeBranch,CarerS,Sitterservice,CNADundeeBranCh,Octotxr1996.

CarersNationalAssociationinWales,Ammualreport1995−96,CNAinWales・

−・AnnualreportApri11996toMuch1997,CNAinWales・

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・Carers−Wales,June1997,CNAinWales.

CaJerSNationalAss∝iationIsleofWightBranch,Caring,neWSletter,No・50,1996,CNAIsleofWightBranch・

CarersNationalAss∝iationKentOfnce,Annualreport1994−95,CNAKentOmce.

・Annualreport1996−97,CNAKentOfnce.

−・DirectoryofcarerSSupPOrtgrOupSknowntoCarerSKent1997,CNAKentOfhce.

−・KentCarersNewsletter,Decemtxr1996,CNAKentOfnce.

・Listentocarers,CNAKentOfnce.

CarersNadonalAss∝iationLondonRegion,DirectoryofprQjectssupportingcarersfromblackandminorityethー niccommunitiesinGreaterLondon,CNALondonRegion,Apri11995・

−・LondonblackcarerS.WOrkers一forum,CNAIJOndonRegion,1997・

CaJerSNationalAss∝iationNorthofEnglandOffice,CarersVoiceNorthWest,January1996toWinter1998,

CNANorthofEnglandOfnce.

CarerSNationalAss∝iationNorthWest,CarersNationalAss∝iationintheNorthWest,CNANW.

−・CarersVoiceNorthWest,January1997,Spring/Summer1997,CNANW.

−・ReportoftheMerseysidecarerSCOnfbrence,5thMarCh1997,CNANorthWest.

−・SecondreportApri11995−March1996,CNANorthWest.

CarersNationalAss∝iationScotland,Scotland■sCarers,thenewsletterofCNAinScotland,August1997,Septem−

ber1998,CNAScotland.

Ca陀rSNationalAss∝iationSuttonBranch,CarerSSuPpOrtgrOuPS,CNASuttonBranch,Decemtxr1995.

−・Newsletter,Apri11995,Octotxr1996,CNASuttonBranCh.

CarerSNetworkWestminster,BlackandethnicminorityCarerSCOnftrence,27thOctober1994,CNW,1995.

CarerSNetworkWestWilts,Easingthestrain・arepOrtOntheruralcanrsprqect,June1991−MarCh1993,CarerS NetworkWestWilts,October1993.

C訂erSOfWestLothian,Annualreport1996−97,CWL.

−・Carersinfomationpack,CWL.

−・DovehillNews,IssuelO,Winter1997,CWL.

CarerSResourceCentre,CarerSreSOurCeCentreinformationsuppotresources,CRC.

−・Telephonenumt rSforcarer,December1997,CRC.

−・Whoc∬eS?,CarersAss∝iationVictoria,CanngfbrcarerS,CRC.

CarersSandwell,Annualreportandaccounts1995/96,CarersSandwell.

−・AnnualrefX)rtandaccounts1996−97,CarerSSandwell.

−・Annualreportandaccounts1997−98,CarersSandwell.

−・TYleCarerSguidetonurslngandresidentialcare,SOmequeStionstoaskandpolntStOCOnSider,CarerS SandwelL

CarersSupportBrentw血,Youngcarer,CarerSSupportBrentwod.

CarerSSupportinBrent,Brentyoungca陀rSprqeCt,informationfbrfamilies,CarersSupportinBrent.

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−140−

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